Or journey continues with Epilepsy

4. Apr, 2018

You may hear other words used, such as 'attacks', 'fits', 'turns', 'blackouts'. Whereas epileptic seizures are caused by a sudden, abnormal electrical discharge in the brain, dissociative seizures happen through a process in the brain known as dissociation.

Dissociative seizures happen for psychological reasons rather than physical ones. The psychological reasons could include thoughts, feelings, and present and past experiences. This is different from epilepsy. Epileptic seizures happen because of abnormal electrical activity in the brain.


Eugen Bleuler, a Swiss psychiatrist, was the first person to use the term. He started using it around 1911 to refer to one group of symptoms related to schizophrenia. In the 1940s, researchers in the United States began to use “autism” to describe children with emotional or social problems.

Media Focus.

Recently on TV prostrate cancer, testicular cancer, breast cancer Awareness by others. Which is fantastic to get the much needed awareness in the public domain. Why? I ask is their nothing about epilepsy & seizures on TV to bring Awareness. Soaps & Dramas are just not good enough for the portrayal of Epilepsy. It's not factual! 


My vision is, someday Epilepsy is not going to be stigmatised There will be a cure eventually. Others will be more empathic towards neurological illnesses. It's really ridiculous in today's modern world Neurological conditions are just swept under the carpet. Hope is a wonderful element to have.

Music & Epilepsy.

Scientists at Ohio State University have found that listening to classical and jazz music can help those suffering from epilepsy. ... The brainwave activity of epilepsy patients showed greater synchronisation with the musical element in the temporal lobe, compared to those without the condition.epilepsy appear to react to music differently from the brains of those who do not have the disorder, a finding that could lead to new therapies to prevent seizures, While researchers do not believe music can replace current epilepsy treatment, it is possible that music can be used in conjunction with traditional therapy to help prevent seizures. Stress can trigger seizures and many of the patients with epilepsy reported feeling relaxed after listening to the music.


Meanwhile our own circumstances are going through transition to Adult Services from Paediatrics. Guardianship process is starated again. It seems to be when the child hits 18 years of age all the complexities and medical lifelong issues miraculously disappear. The continuity from Paediatric Services needs to continue into Adult Services. It's a battle no doubt about that. We continue, I continue to fight this system for the best possible quality of life for my Son.

What I say to you is 'when the going gets tough' 'Do not Quit'

Julie x