Summer Holidays 2017

24. Jun, 2017

There are some Trials in Australia with Epilepsy and controlling seizures. Every bit of research must help the people with Epilepsy. Why is so difficult and different to bring media attention to Neurological areas of the Body? ie The Brain.

 

I'm really beginning to wonder about some of the 'Medical Profession' Do they actually listen to the Patient at all?

 

Epilepsy is more than just a seizure it's a life changing condition affecting the person and their families terribly.

 

It's not contagious and nobody can catch it from the patient.

 

The drugs Carry all sorts of contraindications. The follow up on the effects and efficiency of these drugs should be clearly monitored

 

Lewis, my Son should have had follow up blood tests taken. His bloods a few months ago showed not clotting properly and low Folic. He's been lethargic, mouth ulcers and spots. The Dentist last week was dumbfounded at the ulcers in his mouth. She asked for full Blood checks.

 

Monday, after speaking with own GP last Friday he got bloods taken this week. Surgery called teatime tonight, some of the tests back. More tablets for Lewis. His bloods showed low folic and clotting deficiency.

 

Now, the Dentist asked for this. Not the Paediatric Neurologist.

 

Is it that difficult for the Paediatric Neurologist to have implemented these further tests. I am not a happy mother.
Do all our kids not deserve the best of treatments. Especially with the long term complex medical conditions. Does everyone else with Epilepsy not deserve the best management of their seizures & other classes of medical contraindications? 


Are follow ups and blood tests on the contraindications of the toxicity of AEDS not paramount in Epilepsy?

 

We are awaiting Celiac and Liver function etc to come back.

 

Now, if long term patients like my Son are falling through the net. What do newly diagnosed patient's have to endure. 

 

This is clearly unacceptable. My Sons life matters. There is no excuse for the failure to monitor his Bloods and the effect 17 years on Epilepsy Drugs have or have not caused to his body.

Folic Acid Deficiency 

"Folic acid deficiency anemia happens when your body does not have enough folic acidFolic acid is one of the B vitamins, and it helps your body make new cells, including new red blood cells . Your body needs red blood cells to carry oxygen."

 

 A SPECT scan is a type of nuclear imaging test, which means it uses a radioactive substance and a special camera to create 3-D pictures. While imaging tests such as X-rays can show what the structures inside your body look like, a SPECT scan produces images that show how your organs work.

Pet Scan EEG Video Telemetry CT Scan MRI Scan All these Scans help in getting diagnosis of Epilepsy with identifying underlying causal factors that may be evident.