#carers #family #thisiscaring #CarersWeek
What happens when there is no Happy Ending for some? No light at end of tunnel. Groundhog day for all us #carers
It did make me stop and think?
Whilst the Disability Hatecrime
Awareness is very much needed out in Society, a lot of #disabled and #vulnerable people do fall under the radar. They do not get the help or the support that 'many' do have and get from friends, family especially the primary carer.
The stigma and discrimination
across the world of epilepsy is still so evident. Understanding the Neurological condition is still sparse by others.
So the question is?
Is it right to subject and expect the Disabled/Vulnerable Community to an area in Life that could possibly
be detrimental to their safety and wellbeing? Subject them to the ignorance of others.
What happens to these individuals? When the Supports and Resources are not there. No friends or family! To look after the vulnerability of others.
A lot of
us parents with Disabled kids & young Adults would never consider putting them in a situation making them so vulnerable in life. The right Supports and Care packages would need to be implemented to make the transition on Independant Living safe and viable
for their needs.
This is often not there. Families have this brunt of care and responsibility. Juggling work & other commitments. Carers become ill and can be hospitalised. This happens in so so many family situations. We #carers simply 'burn out'
This is an area where if you are seen to be coping' you are left to cope as a family unit.
I see this now as a bigger picture, in Disability Hate Crime Awareness. There are so many other factors on keeping a Disabled & Vulnerable individual truly
safe in the wider Community and not left alone to fend for oneself in Society. How Carers are a forgotten entity and have to protect their loved ones entirely. This is insurmountable to our own wellbeing and social interactions.
My own Son will not
live with Supports in place for him, let alone independently.
So what happens to a young adult like him?
There are no Specialised Residential Outlets in Scotland, for the Complex Needs and lifelong medical needs young Adult. A few in England.
These individuals would be so vulnerable in Society against #bullying and #hatecrime My Son would not be Safe!
If anything happened me?
Where would he go?
Who would truly understand his vulnerabilities?
Who would know he needed
Lifelong Medical Care and Support.
One size does not fit all.
These kind of factors and vulnerabilities would be targeted so much by those whom chose to exploit the disabled & vulnerable community.
How do we Stop that?
to Society, my Son - It would Fail Him.
Carers have a vast responsible role to which we are simply left to 'get on with it'
Our loved ones depend on us so much. Epilepsy and the other contraindications are terrible. We need all neurological conditions
better understood now.