Don't Label my Child

2. May, 2016

Description - Epilepsy is one of the most common neurological disorders. In the UK, 600,000 or one in every 103 people has epilepsy and each day 87 people are diagnosed with epilepsy. Many patients suffering from epilepsy – who have for years been slaves to prescription medication that offers little to no relief from their seizures ... is their respective follow up of the effects these drugs have on the Human Body adequate? I think not. The pills are given out and unless you speak of the or any side effects, that's it.

Living in a world that does not make space for those that are challenged in some manner is extremely difficult for the person affected and also their loved ones. We parent/carers come up against barriers every day. Challenged by everything - which just isn't right.

Today may be a bank holiday, but when you're caring for family or friends it often doesn't mean a chance to have a break.

In Light of recent events on the exclusion of a child with Autism, Epilepsy, Hemiplegia and Complex needs (my Son) from participating in a school trip.

I feel compelled to write this:-

There are boys and girls that nobody invites to birthday parties, social events, for example.

There are special kids who want to belong to a team, but are never selected, because it is more important to win. They are perceived as not "whole" so to speak.

Children with special needs are not rare or strange. They only want what everyone else wants, to be accepted in the wider Community.

Our kids and young adults are 'Different not Less' Don't Label difference. 

How is the day looking for you? Have you got an outing planned, or will you be staying closer to home today?

We are at home. My Son is still asleep. It's 12.29 GMT He's had a bad night. Many partial seizures in sleep.

Welcome to the World of Epilepsy. This Neurological Condition that's ignored by so many. Epilepsy is no laughing matter. It's not kind in its insults of the Brain.

It needs understanding, empathy and educational input at the earliest levels. Only then can we hope to tackle the ignorance and the stigma, still prevailing in the 21st century of EPILEPSY.