We've had Epilepsy Awareness Day 26th March 2016

What did you do for Epilepsy Awareness Day?

We were having a Cupcake Party to raise funds for Epilepsy Alarms.

Awareness Day for us is every day for Epilepsy.

Presently it's hectic - so many things to deal with. Health, School, Transition into Adulthood and Guardianship Process. My goodness is this a challenge and more. 😢

Where does this all leave us..it leaves us fighting this system of ours. These professionals and experts set in place MHO''s etc don't know your child. They are making; in our case not making a definitive decision on matters. 

We will see next few weeks how Guardianship Process goes. 

Learning About Epilepsy and Seizures

About Epilepsy.

What you need to know.

When it comes to epilepsy, knowledge is power. Whether you’ve had epilepsy for years or you are newly diagnosed, the more you know the more you can do to try to control epilepsy and live life on your terms.

What is epilepsy?

Epilepsy is a neurological disorder sometimes called a seizure disorder because seizures are the primary symptom. But a single seizure is not necessarily a sign of epilepsy. Tests such as brain scans can determine if a person has epilepsy.

What is a seizure?

A seizure is the result of a change in the normal electrical activity in the brain. Depending on the type of seizure—there are many—it can last for a few seconds or minutes, manifesting in various ways, with symptoms ranging from rapid blinking and staring at nothing in particular to loss of consciousness, falling, and muscle jerks. There are two major categories of seizure: generalized and partial onset, also known as focal.

Generalized seizures happen when both sides of the brain are affected. Some examples include: Absence seizures (also known as petit mal seizures), which can cause rapid blinking or staring into space. Tonic-clonic seizures (also known as grand mal seizures), which can cause involuntarily crying out, loss of consciousness, falling, and convulsive muscle jerks or spasms Partial onset seizures happen when one area of the brain is affected. According to the National Institute of Neurological Disorders and Stroke, about 60% of people with epilepsy experience partial onset seizures, which include:Simple partial seizures, which can cause twitching or the sense of an odour or taste that’s not actually there. Complex partial seizures, which can impair consciousness so a person may appear dazed or confused, possibly unable to respond to others for a few minutes secondary generalized partial seizures, which can occur when a partial seizure spreads to both sides of the brain, becoming a generalized seizure.

Who gets epilepsy?

Epilepsy does not discriminate and can affect people from all walks of life.

People with epilepsy experience repeated seizures. Epilepsy is a brain condition that causes seizures, which are disruptions of the electrical communication between neurons. Following tests, a person is said to have epilepsy after he or she has experienced two or more unprovoked seizures, at least 24 hours apart.

What is the difference between seizures and epilepsy?

Seizures are the main symptom of epilepsy, but having a seizure once does not necessarily mean a person has epilepsy. A single seizure can result from other medical problems, such as high fevers, low blood sugar, very high blood sugar in diabetics, an imbalance of salt in the blood, eclampsia during or after pregnancy, and sleep deprivation.

Guardianship Process and Quality of Life. 

The point is for me basically - how can someone who only sees your child/young adult for 15 minutes approximately, make life long decisions or part decisions, on what they need in life.

They ask me to Risk take..are you for real. Kept him safe all these years. He's vulnerable with his complexities, Autism and Hemiplegia. He's had major brain surgery for Epilepsy.

It's a big bad World out there. Either educate yourselves on Epilepsy or watch me fight his corner.

I will take no Risks on my Son's safety or Quality of Life.

They don't know him way I do.

I'm afraid the ambiguous comments of the over protective mum, outdated now. I shall not be intimidated or phased by anyone. I simply know my own Sons capabilities & vulnerabilities.

Just know that all you 'Professional Experts' out there.

His mother x