Did you know some of these things about Epilepsy

Epilepsy is more than just a seizure it's a life changing condition affecting people and families lives terribly.

Yesterday February 8th was International Epilepsy Day. #epilepsyday

Imagine losing control of all bodily functions for a few minutes. Coming around disorientated - can you!

Epilepsy is not contagious and you cannot catch it from someone. Stigma is very rife still in 21st century. We need to come out of the dark ages.

There are many famous people with epilepsy. Did you Joe Public know of this one?

Epilepsy is not a mental health condition it's a Physical Condition..needing brought into focus realtime.

Invisible illness. Epilepsy plus other complexities. Who would think looking at this picture of my Son he has intractable epilepsy. Has had a Hemispherectomy of the right Parietal Lobe. Refractory Seizures resistant to a cocktail of drugs. The drugs only suppress the seizures don't cure them. The toxicity factors detrimental to the cognitive functioning of the person. Epilepsy is so much more than just a Seizure everyone.

Saturday 6th February X2 Tonic Clonic Seizures from sleep 5am and 9am for my Son. It knocks the stuffing from him. Days to recover and his temperament is awful. The swearing has to be chastised. It's another world your in. The person and the Carer. ..

Have just asked 'epilepsy action' to why no groups run in Scotland. They come back with we have epilepsy scotland. 

Further asked if you run groups in England, Wales and Nothern Ireland why not Scotland... It comes down to the Economic Factor of Resources.

International Epilepsy Day is a special event which promotes awareness of epilepsy in more than 120 countries each year. Every year on the second Monday of February people join together to celebrate and highlight the problems faced by people with epilepsy, their families and carers.

This is a day for everyone, no matter where you are, no matter how small your group or large your area, no matter whether you focus on the medical or the social aspects of the disease. We want you to help us celebrate International Epilepsy Day! Let’s speak with one global voice.

The Day is a joint initiative by the International Bureau for Epilepsy (IBE) and the International League Against Epilepsy (ILAE).

My name is Julie and I am a mum and a carer. I care for my 15-year-old disabled son Lewis and I am what’s known as a parent carer.

It’s a real shock when you’re told your child has a disability. When you become a parent you expect to care for your child and you expect there to be challenges along the way – it’s part and parcel of being a parent. But when they have a disability, your role as mum or dad, as nurturer and provider, becomes much, much more than you ever imagined.

Epilepsy with other life changing conditions put a terrible strain on the family unit. We need more help and support. I turned to @carersuk and @carerscotland

Adviceline 0808 808 7777 or www.carersuk/forum No one should have to care alone.

Julie Clark  Local Scottish Carersuk Ambassador 

julie.clark@carersuk.net

www.change.org  Epilepsy Alarms into Hospital's NHS. Please sign takes only 30 seconds 💜👍

 

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